2025 SCOR Awardees
Amanda Kastrinos, Ph.D.
Assistant Professor, Public Health Sciences
Kelly Hyland, Ph.D.
Assistant Professor, Psychiatry and Behavioral Sciences
Project: Characterizing dyadic communication challenges and support needs in young adults caring for a parent with metastatic cancer
Summary: Half of cancer caregivers in the U.S. are young adults (YA) (age 18-35) caring for a parent with cancer. YA child caregivers experience distressing emotional, social, and financial burdens given their place in the lifespan, including a significant shift in family roles. Caregiving for a parent with metastatic cancer (e.g., metavivor) is further complicated by significant uncertainty and variability in prognosis, goals of care, and caregiving needs over time.
Open communication within the survivor-caregiver dyad is associated with better physical and psychological outcomes for both parties. However, YA child caregivers and metavivor parents face unique communication challenges, such as parents withholding medical information to shield children from distress and children withdrawing from their parent as a strategy to cope. These communication patterns can increase anxiety, uncertainty, and distress in the dyad.
This study will characterize communication challenges and support needs in the YA child caregiver-parent metavivor dyad to inform the development of a dyadic behavioral intervention specifically tailored to this unit and their needs. Metavivors and caregivers will participate in in-depth interviews and complete an online questionnaire. Findings will provide critical pilot data to inform the development of a tailored dyadic intervention to improve dyadic communication and quality of life.